Metabolic Support UK (formerly known as Climb) are the leading patient organisation for Inherited Metabolic Disorders supporting thousands of patients worldwide.
MSUK is a Charity close to my heart having had two Grandsons with the condition. Sadly one of them Jack, was taken from us at 2 years of age. You can read ‘Jack’s Story’ by clicking on the photo below;
Metabolic Support UK (formerly known as Climb) was inspired by Jennifer Rachel Greene (1978 – 2007), who was born with a rare metabolic disorder called Cystinosis.
Finding little information and support available following this devastating diagnosis, Jen’s parents, Peter and Lesley Greene, with help from family, friends and the medical profession, launched the charity in November 1981, encompassing all metabolic disorders.
Its mission then: to be the world’s leading advocate and provider of bespoke support to families; signpost to the best experts; raise awareness amongst the medical, healthcare, social care and teaching professions; and fund research for treatments and ultimately cures.
Metabolic Support UK’s work and reputation in delivering these objectives has spread from the UK to Europe and beyond. It is part of a worldwide collaborative network of groups and organisations, ensuring it is at the forefront of developments such as newborn screening and treatments.
Today, Metabolic Support UK continues to be committed to its vision of raising awareness and providing bespoke support to improve the lives of those affected by Inherited Metabolic Disorders, keeping Jen’s legacy alive.